beth ([info]bethzebra) wrote,
@ 2008-08-31 20:09:00
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Request
It's late and I don't know how many of you will log in before midnight but ...

American Express is running a competition for funding for non-profit projects.  One of the competing projects is for funding to study neurofibromatosis type 1, a genetic condition as common as cystic fibrosis or muscular dystrophy but far, far less well known.  It can result in tumors growing on nerves anywhere in the body, including the optic nerves, the spine, or in the brain.  If you go to the Children's Tumor Foundation, www.ctf.org, and look under What's New over on the right, there's a link to a funding project for NF 1.  If you would, click on that link and go vote for this project (or another project if you see another one you think is more worthy).  I'd take it as a real favor.  Voting ends at midnight.



(16 comments) - (Post a new comment)


[info]avidbeader
2008-09-01 12:53 am UTC (link)
Done.

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[info]bethzebra
2008-09-01 02:42 am UTC (link)
Thank you!

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[info]1ginko
2008-09-01 01:07 am UTC (link)
Clicked and nominated.

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[info]bethzebra
2008-09-01 02:42 am UTC (link)
Thank you!

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[info]jayfurr
2008-09-01 02:37 am UTC (link)
Done.

Does one of your kids have a CTF issue? Or a family member? I'm too tired to remember right now (walked 14 miles over the mountains today).

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[info]jayfurr
2008-09-01 03:07 am UTC (link)
If the countdown clock on the website is accurate, the deadline is midnight tomorrow.

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(Anonymous)
2008-09-01 03:08 am UTC (link)
If the countdown clock on the website is accurate, the deadline is midnight tomorrow.

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[info]treddytrafalgar
2008-09-01 03:10 am UTC (link)
Done.

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[info]bethzebra
2008-09-02 01:49 pm UTC (link)
Thank you!

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[info]wally
2008-09-01 03:25 am UTC (link)
Done.

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[info]bethzebra
2008-09-02 01:49 pm UTC (link)
Thank you, Wally.

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[info]wally
2008-09-02 01:53 pm UTC (link)
Rar rar heh heh rar heh snassen frassen ratzen fratzen heh heh rar rar MEOW

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[info]caroleotter
2008-09-01 03:40 am UTC (link)
Done.

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[info]bethzebra
2008-09-02 01:49 pm UTC (link)
Thank you!

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Amex Members Project Update
(Anonymous)
2008-09-02 01:40 pm UTC (link)
Thank you so much for posting this. The NF Drug Discovery Initiative finished #21 out of 1190 entries! While this does not guarantee our advancement to the next round of the top 25, since the Amex Advisory panel will have a voice in the selection, it is a great start. Thanks to your work and that of many others I am hopeful that we make the next round.

Voting will begin for that round on September 9. I will be in touch to again seek your support in posting and distributing this information.
Best regards,
John Risner, President
Children's Tumor Foundation
Ending Neurofibromatosis Through Research
95 Pine St. 16th Floor
NY NY 10005
212 344-6633 x249
www.ctf.org


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Re: Amex Members Project Update
[info]jayfurr
2008-09-02 01:43 pm UTC (link)
That's very good to hear.

If I understand correctly, you have to be an Amex cardholder to vote in the next round -- and I still have an Amex login even though I cancelled my card a while back. I don't know how many other people out there have Amex cards, but on the off chance that the project does advance, it would be good to start beating the bushes now. :)

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